Our multi-professional pain management team have brought together a list of online accessible links and further reading to support people living with persistent pain and CFS/ME, their families and carers.
These resources do not replace a medical diagnosis for symptoms of on-going pain or persistent fatigue and should not be used for this purpose. They are useful sources of information before your first appointment with a Pain Pathway clinician, and can be used to support on-going self-learning and long-term condition management.
Please click here if you need to contact the PICS Pain & CFS Service
Websites
Explaining pain – why things hurt, pain management advice and support
www.knowpain.co.uk – click on resources tab, booklets and open the Tazzy Persistent Pain Booklet
http://www.action-on-pain.co.uk
https://www.practicalpainmanagement.com/patient/resources
Explaining CFS/ME – causes, diagnosis, management and support for those living with the CFS/ME
www.nhs.uk/video/Pages/CFSexpert.aspx
FMA UK – FMA UK – UK’s National charity for fibromyalgia
Mental Health Support
https://www.mentalhealth.org.uk/
Medication Support
https://www.nottsapc.nhs.uk/de-prescribing/
Mindfulness – A range of information and mindful practices to try
https://www.ummhealth.org/center-mindfulness
Guided videos to help stay active or increase activity levels
https://www.nhs.uk/conditions/nhs-fitness-studio – a range of movement options to explore
Insight meditation Free
Events
Footsteps Pain Festival 2020/21
Click on this link, scroll down and fill in your details to be informed of festival events.
Videos
Life After Opioids
Life After Opioids from Live Well with Pain on Vimeo.
After more than a decade and half of trying – unsuccessfully – to deal with her fibromyalgia through opioids, Louise finally decided that one way or another, she was going to have to manage her pain another way …
In Louise’s words: “I got my life back – I’m living proof that there really is life after opioids!”
A Live Well with Pain production
(duration: 23 minutes)
Sean’s Story
Sean’s shares his story of how self management techniques and group sessions improved his quality of life rather than using medication or hospital procedures.
Adam’s Story
Adam’s story: This cartoon from an external source offers an example of someone dealing with a new pain condition who found ways to cope and improve their quality of life
Explain Pain
By: David Butler & G. Lorimer Moseley
Living well with pain and illness, using mindfulness to free yourself from suffering.
By: Vidyamala Burch
Painful Yarns
By: G. Lorimer Moseley
Mindfulness for Health, a practical guide to relieving pain, reducing stress and restoring wellbeing.
By Vidyamala Burch and Danny Penman
The Happiness Trap and The Reality Slap
By Russ Harris.
The mindful guide to self – compassion.
By Christopher K. Germer.
Self-Compassion, Stop beating yourself up and leave insecurity behind
By Kristen Neff.
The mindful way through depression.
John Teasdale and others (has CD with it).
Journey into Mindfulness. Gentle ways to let go of stress and live in the moment
Dr Patrizia Collard
Mindfulness: a Practical guide to finding peace in a frantic world
By Mark Williams and Danny Penman (CD comes with the book)