Useful resources for people living with persistent pain conditions and CFS/ME

Our multi-professional pain management team have brought together a list of online accessible links and further reading to support people living with persistent pain and CFS/ME, their families and carers.

These resources do not replace a medical diagnosis for symptoms of on-going pain or persistent fatigue and should not be used for this purpose. They are useful sources of information before your first appointment with a Pain Pathway clinician, and can be used to support on-going self-learning and long-term condition management.

Please click here if you need to contact the PICS Pain & CFS Service

Websites

Explaining pain – why things hurt, pain management advice and support

www.tamethebeast.org

www.knowpain.co.uk – click on resources tab, booklets and open the Tazzy Persistent Pain Booklet

www.livewellwithpain.co.uk

www.retrainpain.org

http://www.action-on-pain.co.uk

https://www.practicalpainmanagement.com/patient/resources

Explaining CFS/ME – causes, diagnosis, management and support for those living with the CFS/ME

www.nhs.uk/video/Pages/CFSexpert.aspx

www.actionforme.org.uk

www.meassociation.org.uk

FMA UK – FMA UK – UK’s National charity for fibromyalgia

Mental Health Support

https://www.mind.org.uk/

https://www.mentalhealth.org.uk/

https://insighttimer.com/

Medication Support

https://www.nottsapc.nhs.uk/de-prescribing/

 

 

Mindfulness – A range of information and mindful practices to try

www.franticworld.com

https://www.ummhealth.org/center-mindfulness

www.stressreductiontapes.com

www.wildmind.org

 

Guided videos to help stay active or increase activity levels

https://www.nhs.uk/conditions/nhs-fitness-studio  –  a range of movement options to explore

https://www.nhs.uk/live-well/exercise/10-minute-workouts

Events

Footsteps Pain Festival 2020/21

Click on this link, scroll down and fill in your details to be informed of festival events.

Festival – My Live Well With Pain

Videos

Life After Opioids

After more than a decade and half of trying – unsuccessfully – to deal with her fibromyalgia through opioids, Louise finally decided that one way or another, she was going to have to manage her pain another way …

In Louise’s words: “I got my life back – I’m living proof that there really is life after opioids!”

A Live Well with Pain production

(duration: 23 minutes)

Apps For Smartphones

Insight meditation           Free

Headspace                          Free introductory 10 days
Further Reading

Explain Pain

By: David Butler & G. Lorimer Moseley

Living well with pain and illness, using mindfulness to free yourself from suffering.

By: Vidyamala Burch

Painful Yarns

By: G. Lorimer Moseley

Mindfulness for Health, a practical guide to relieving pain, reducing stress and restoring wellbeing.

By Vidyamala Burch and Danny Penman

The Happiness Trap and The Reality Slap                            

By Russ Harris.

The mindful guide to self – compassion.

By Christopher K. Germer.

Self-Compassion, Stop beating yourself up and leave insecurity behind

By Kristen Neff.

The mindful way through depression.

John Teasdale and others (has CD with it).

Journey into Mindfulness. Gentle ways to let go of stress and live in the moment

Dr Patrizia Collard

Mindfulness: a Practical guide to finding peace in a frantic world

By Mark Williams and Danny Penman (CD comes with the book)