Our multi-professional pain management team have brought together a list of online accessible links and further reading to support people living with persistent pain and CFS/ME, their families and carers.
These resources do not replace a medical diagnosis for symptoms of on-going pain or persistent fatigue and should not be used for this purpose. They are useful sources of information before your first appointment with a Pain Pathway clinician, and can be used to support on-going self-learning and long-term condition management.
Useful Resources
Websites
Explaining pain – why things hurt, pain management advice and support
www.knowpain.co.uk – click on resources tab, booklets and open the Tazzy Persistent Pain Booklet
http://www.action-on-pain.co.uk
Explaining CFS/ME – causes, diagnosis, management and support for those living with the CFS/ME
www.nhs.uk/video/Pages/CFSexpert.aspx
FMA UK – FMA UK – UK’s National charity for fibromyalgia
Mental Health Support
https://www.mentalhealth.org.uk/
Medication Support
https://www.nottsapc.nhs.uk/de-prescribing/
Mindfulness – A range of information and mindful practices to try
https://www.ummhealth.org/center-mindfulness
Guided videos to help stay active or increase activity levels
https://www.nhs.uk/conditions/nhs-fitness-studio – a range of movement options to explore
https://www.nhs.uk/live-well/exercise/10-minute-workouts
Events
Footsteps Pain Festival 2020/21
Click on this link, scroll down and fill in your details to be informed of festival events.
Festival – My Live Well With Pain
Videos
Life After Opioids
Life After Opioids from Live Well with Pain on Vimeo.
After more than a decade and half of trying – unsuccessfully – to deal with her fibromyalgia through opioids, Louise finally decided that one way or another, she was going to have to manage her pain another way …
In Louise’s words: “I got my life back – I’m living proof that there really is life after opioids!”
A Live Well with Pain production
Sean’s Story
Sean’s shares his story of how self management techniques and group sessions improved his quality of life rather than using medication or hospital procedures.
Adam’s Story
Adam’s story: This cartoon from an external source offers an example of someone dealing with a new pain condition who found ways to cope and improve their quality of life.
Provided for people registered to GP practices within, Nottingham West, Nottingham North and East, Rushcliffe, Newark and Sherwood, and Mansfield and Ashfield Clinical Commissioning Groups.
An innovative community pathway where a multidisciplinary team of specialist clinicians help patients with spinal and other persistent pain conditions, as well as patients with chronic fatigue syndrome (CFS), to get the right diagnosis and treatment, manage their symptoms better and improve their quality of life.
The service provides holistic patient centred care within a biopsychosocial framework, with individual treatment or group work, depending on the needs of the patient. A highly skilled cognitive behavioural therapist (CBT) provides supervision for all staff working with local substance misuse services and IAPT providers to ensure the mental wellbeing of our patients is looked after. Regular medication reviews take place to optimise analgesia. There is access to a complex opioid clinic that provides a link to substance misuse services.
It is the first chronic pain service in the UK to employ a wellbeing practitioner to facilitate the self care part of the pathway. The wellbeing practitioner promotes self-management, forged partnerships with local voluntary groups, undertaken goal setting, exercise referral schemes and weight loss programmes.
The pain pathway is underpinned by an experienced administration team, which network with other healthcare colleagues, including the GP practices, pharmacists and physiotherapists. The team arrange the numerous clinics (see below) helping ensure cases are seen as soon as possible and closer to home.
The service has resulted in:-
- More chronic pain management cases provided in the local community, with referrals to hospital greatly reduced.
- Increased use of physiotherapy, exercise and psychological therapies in the care of pain management
- 50% reduction in the use of injections and reduced prescriptions of drugs
- Waiting times have been reduced by a third during 2018.
Chronic Fatigue Syndrome/ME Service
The services can be accessed via your local GP. To know more about the pain service please contact 03000 830 000 option 1 or option 5 for more information about the Chronic Fatigue Syndrome (CFS) service.
The pain service is currently provided from a wide range of venues across Nottinghamshire.
The venues are listed below.
Pain Clinics
Eastwood Primary Care Centre, Eastwood
Newthorpe Medical Centre, Newthorpe
Oaks Medical Centre, Beeston
Hickings Lane Medical Centre, Stapleford
Castle Healthcare Practice, Wilford Lane, West Bridgford
Bay Therapy Centre, Lady Bay, West Bridgford
Highcroft Surgery, Arnold town centre
Magnolia Therapy Centre, Mansfield Road, Carrington
Bulwell Riverside Health Centre, Bulwell
Hucknall Orthopaedics – Hucknall
Balderton Primary Care Centre, Balderton
Abbey Medical Group, Blidworth
Kirkby Primary Care Centre, Kirkby in Ashfield
Forest Medical, Rosemary Health Centre, Mansfield
Southwell Physiotherapy & Sports Injury Clinic , Southwell
Crown Medical Centre, Forest Town
Brierley Park Medical Centre, Huthwaite
Nottingham Road Clinic, Mansfield
Rushcliffe Arena – Wellbeing Practitioner only
Leisure Centre Groups
Tennis Centre, University Boulevard, Nottingham
Kimberley Leisure Centre
Redhill Leisure Centre
Pain Management Groups
Carnegie Civic & Community Centre, Stapleford
Arnold Methodist Church
Fiveways Community Centre, Edwards Lane, Nottingham
Middle Street Resource Centre Beeston
West Park Pavilion, West Bridgford
Chronic Fatigue Syndrome (CFS) Group
Sherwood Methodist Church